Doc Appointment Cancelled

Mackynlee had an appointment today to have a 24 hour PH probe test with the GI specialist. Yesterday evening, the nurse called and has postponed the appointment until further notice. I have mixed feelings about this. In one way I was happy to not have to do this today, in another way I just wanted to get this over with. She will have her feeding tube in one nostril and another tube in her other nostril for 24 hours. I know this is going to be annoying for her. The feeding tube has not been stressful lately. She has been keeping it in, and has been keeping down most of her feedings. She will eat from the bottle an ounce or two at a time. We feed her at least 770ml's a day, so we subtract what she takes by mouth and give her the rest through her tube. The home health nurse did not come yesterday, but we all feel sure she is gaining weight.

She is active as ever!! I think she is going to walk before she crawls. She is moving around everywhere, but it is more rolling than crawling. Her personality is blossoming. The other night I was handing her over to Mark(she usually goes right to him) she grabbed onto me tightly, turned her head away from him, and said,"hhhhmmmmpppph!" Too funny. Needless to say, I did not give her to him.

We had a wonderful Thanksgiving, and Connor's pirate party turned out to be the best party ever. Mark got off of the hook, he did not have to wear the pirate costume, Tany Powell offered to wear it. I will post some pics from the party later today when I get home. The birthday cakes were spectacular. My mother-in-law bakes wedding cakes, birthday cakes, etc. She always does a wonderful job on ours. She made a pirate with a bird on his shoulder and a treasure chest. We enjoyed visiting our friends and watching our children play together.

As we enjoy the holiday season, remember the words of this poem.

The Real Reason

Excitement and joy are filling the air;
The lights add special decor.
We're shopping for Christmas gifts everywhere,
But are gifts what Christmas is for?

The wreaths and the trees and the parties
Aren't what we need to convey;
It's the birth of our Savior, Jesus,
The real reason for this holiday.

By Karl and Joanna Fuchs

I will continue to update all of you on our appointment and let you know when the date is scheduled to get her g-tube