MRI

Mackynlee has been scheduled for an MRI in the morning. 6:30 PA time, 5:30 MS time. She will be sedated and extubated during this procedure. The MRI is of her brain. They are looking for signs of a stroke, seizures, pressures, etc. Neurologists were concerned today because her eyes roll back and to the right side. They do not move to the left when she is having an "episode". Also, there was concern because Mackynlee has been favoring her right side. She likes to look that way and lay that way. Well, her IV blew this afternoon, it is now in the right hand and she is favoring her left side. So, long story short, I think she is smarter than we all realize and the reason she was favoring a side is because of comfort.

The nurse and I now feel that nothing will be found. We have come to the conclusion, because Mackynlee has done so well this evening that the weird behaviors(? spelling, sorry) have just been because of pain and exhaustion. Today there has been longer periods where she acts her normal self and shorter times that she doesn't act like Mackynlee. I even dressed her today. (Karen and Lauren: I put her on the pink heart outfit you brought her. It looked beautiful on her. I wanted to take a pic to post, but she had a bad diaper and it got all over the outfit. It is being washed now. We'll put it on again soon. LOL) She and I took a stroller ride and she loved it.

Her eating is getting better. Her heart rate is dropping quite a bit while she is resting, but it goes right back up. Doctors and nurses think it is doing this because she is finally getting into periods of deep sleep.

One of the nurses that were here Saturday night, came by to check on us a little bit ago. She commended me on an excellent job. She said she would have gone postal if that would have been her baby in that shape. She said I had so much patience, and when it went away, it was time to go away and demand something be done to help Mackynlee. That made me feel so good to hear.

Game Plan: If nothing is found during the MRI tomorrow and we should know something by tomorrow evening or early Wed morning, and if she continues eating well, we may get to come home sooner than later. Now I really do not know when sooner is, that is just the game plan that the charge nurse shared with me.

Our friends from Wisconsin may get to go home this week!! I am so happy for them. They have been here since Sept. 10th.

Mike and Nichol's baby Allie is still having good days and bad days. Today has been a great day for them. She has finally been taken off of the vent. Allie had surgery the same day as Mackynlee.

What God Hath Promised
Annie Johnson Flint

God hath not promised
Skies always blue,
Flower-strewn pathways
All our lives through;
God hath not promised
Sun without rain,
Joy without sorrow,
Peace without pain.

But God hath promised
Strength for the day,
Rest for the labour,
Light for the way,
Grace for the trials,
Help from above,
Unfailing sympathy,
Undying love.