MRI and EEG

Mackynlee was admitted to Blair Baston at UMC yesterday. Long story short, I am concerned about her weird episodes of eye movement and body deviating to the right, constant moaning and groaning, and issues with eating. I called to tell Dr. Shores these concerns. She insisted we get in an ambulance to get her. I thought it not necessary, but that is what we did. I enjoyed the ride, so did Mackynlee. She slept the whole way and I visited with Donna, the paramedic on the ambulance. Todd: when you talk to her tell her I enjoyed our visit.

A ct scan was performed yesterday. One doc sees the bleeding on the brain, other doc does not. We will know for sure after MRI today. Doctors here think there could be some seizure activity going on. That is contrary to what docs at CHOP say.

I know she is not her normal self. I believe she is in pain much of the time. Hopefully these docs will find out what is going on and get everything under control. I want her back to "normal."

Doctors seem very concerned. I just don't like the fact that they are nervous because she has a HISTORY of Heart problems. Attending would not okay pain med that another doc ordered because of her history. This would not be an issue with CHOP docs on the cardio floor. Hopefully after Dr. Shores, our cardio doc, visits today she will help guide these docs and help them feel more comfortable with Mackynlee.

I will update when I can and when I find out more info. Tests were scheduled for 8. It is 9:30 and we are still in our room. Who knows when we will go for tests and when we will get results. She is resting peacefully right now. Nurse just came in to say not sure when we will be going for tests. That is no surprise to me.


"And Jesus went about all
Galilee, teaching in their synagogues, and preaching the gospel
of the kingdom, and healing all manner of sickness and all manner of disease among the people."
MATTHEW 4:23

Still it is hard to understand,
Why kids have to deal with sickness;
Nothing is worse when one so young,
Succumbs to an evil illness.

Why a young one should go through pain,
Doesn’t make any sense to me;
Yet they still smile and they play,
Making it plain for all to see.

They know that God is ever present,
They have true faith in the Lord above;
They will deal with their situations,
With help from their Lord’s guidance and love.

There may be a special friend involved,
Maybe a sweet blonde named Ginger;
Who'll pamper and spoil them rotten,
Could be a bright Golden Retriever.

She could act as their arms or their legs,
Could be that she even sees for them;
Wake them up for school in the morning,
And might cater to their every whim.

God does work in mysterious ways,
He gives them His love that's unending;
Must have been God that sent me this message,
So a prayer request for them I am sending.

A request to everyone that I know,
As well as to all who write in the Den;
Let’s all include these kids in our prayers,
And to Gingers who may be Heaven sent.

“Dear Lord, You are so kind and merciful,
We place all our faith and trust up above;
Watch over these children and their close friends,
And grant them a miracle through Your love.

We know that whatever You do,
It will be what is best for them;
You know so much better than we,
And You will make them well in the end.”


Lord, you love our child as You love all children,
Bring healing to Mackynlee who is not well.
Stay by her side and comfort her through this trying time.
Keep us ever mindful of Your loving presence
Bless us with Your powerful healing and comfort us also.
Thank You for hearing our prayer!

CONTINUE PRAYING FOR MIKE THORNHILL. HE IS NOT DOING WELL AT THIS TIME, BUT GOD STILL PERFORMS MIRACLES.

PRAY FOR MY FRIEND RHONDA PITTMAN. SHE HAS BREAST CANCER. SHE WILL BE HAVING SURGERY SOON AND CHEMO. POSSIBLY RADIATION.