bedwellfamilyoffive

No news is good news!! Since my last post, all has been going great(other than normal stuff: stomach virus and ear infections). Mackynlee eats fine with no teeth. The neurologist released her! Yes, you read that correctly. One less doc on our list!! Yesterday she went to the heart doc. She was very pleased with everything. She has gained weight. Doc increased the amount of her meds due to increased weight.

Reflecting on last Christmas makes me cringe and makes me thankful. Last year Mackynlee had the feeding tube during this time. We were so stressed about feedings, time in between feedings, throwing up after feedings, etc. We are so blessed that our miracle is doing so good!! Last night I took the children to see some Christmas lights. I could barely keep Mackynlee in the car. She jabbered about the lights. She wanted to get closer to them.

Prayer Requests:
Pray Mackynlee's ear infections stop and we do not have to go to an ENT.

Coach Ray Haney is being moved to long term acute care. He is still on the vent. The long term acute care help people get off vents. Pray for his body to strengthen. Pray for God to give him comfort. Pray for strength for his family.

Pray for my grandmother. She is at home, but not doing well. Please pray for her caregivers as well.

Yesterday, the First United Methodist Church in Columbia had there 2nd annual CHILDREN's DAY OF PRAYER. Two of the prayer boards were pictures of children that have passed away in the last year. The prayer requests on the boards were for their families during this special, but difficult time of year. The song below will touch your heart. We all have our daily struggles(my third grader is not doing well in school, my husband is gone to work when I'd prefer him to be home to see the children sing in church, go get our Christmas tree,etc) but if we really compare our struggles to the ones who have lost children, ours does not seem so bad.

These are One Last Christmas Lyrics by Matthew West

It’s the news that no one hopes for,
Every parent’s greatest fear
Finding out the child you love so much
Might not make it through the year
Now the thought of spending Christmas
Without him just feels wrong
They’ve been praying for a miracle,
Now they’re praying he can just hold on

[Chorus]
For one last Christmas, one last time,
One last season when the world is right,
One more telling of the story,
One more verse of Silent Night,
They’d give anything so he could have
One last Christmas.
courtesy of OriginaLyric.Info
Middle of September
Still seventy degrees
Daddy climbs up in the attic
Brings down candles
Hangs the lights on all the trees,
Then the neighbors started asking
And pretty soon word got around
First it was the neighborhood,
Before too long they lit up that whole town.

[Chorus]
For one last Christmas, one last time,
One last season when the world is right,
One more telling of the story,
One more verse of Silent Night,
They’d give anything so he could have
One last Christmas.

Twenty-seventh of October,
His time was wearing thin
Friends and family, even strangers
That they didn’t know brought presents in
He was weak but he was smiling
Like there was nothing even wrong
They said he wouldn’t make it,
Looks like he got to see it after all

[Chorus]
For one last Christmas, one last time,
One last season when the world is right,
One more telling of the story,
One more verse of Silent Night,
They’d give anything so he could have
One last Christmas.

Original Lyrics Matthew West – One Last Christmas