I wanted everyone to know that things are looking up for Mackynlee. She has increased her intake drastically over the past two days. Yesterday she exceeded the amount that the doctors have set for her minimum. She has gained back some of the weight that she had lost. Keep sending up prayers that we will not have to divert back to the feeding tube.
Mark and I are getting a night away tonight. It is the first time he and I have been alone overnight(with the exception of when Mackynlee was in the CICU and we were at the PRHM, I don't count those nights), since March '08. Thanks sooooooo much Meemaw(Ms. Sharon Porter) for camping out with the three musketeers while we are away. You are the best!! I would be in a mental institution without you. That is not a joke either.
I wanted to share the lyrics of this Christian song titled: God Will See You Through
Since I saw you last I've had some ups, some downs, some hurts, some pain- I won't lie, I needed God to come revive my soul again- But it never got so bad that I gave in- in my weakest hour the Lord- He stepped right in-
So my testimony is God will see you through
So my testimony is God will see you through
It's not easy when you try each day to smile and hide your pain
and the devil does his best to magnify your every fear, then you try your best to stand but still you fall, but I thank God that grace and mercy heard my call-
So my testimony is God will see you through
So my testimony is God will see you through
Bridge:
Don't stop prayin' - you can make it - don't stop believin' -
you will receive it
Lead:
I've been through the fire- I've been through the flood- but He promised never to leave me- oh never alone
So my testimony is God will see you through
So my testimony is God will see you through
Vamp:
He'll see you through
He'll see you through
Friday, April 23, 2010
Tuesday, April 20, 2010
AnotherRollerCoasterRIde
We are still around, just cannot seem to find the time to post lately. The last week has been pretty difficult. Mackynlee has lost a pound. We may be facing the "feeding tube" again. I cannot express to you what the thought of that does to me. She has also had some major throwing up issues. The weight loss was before the throwing up set in. We are not certain if she had a virus or what was going on. Thank God she has finally able to take her pediasure again and is keeping it down. We will know more about the feeding tube by her weight at the beginning of next week. I know God does not put any more on you than you can handle, but lately I am so not sure how much more I can handle. If we have to do the feeding tube again, I will need more prayer than ever before.
Life is challenging. Life with a sick child is overwhelmingly challenging at times. (Not even sure overwhelmingly is a word.) It is always "what if this?" "what if that?" "should I go home from work?" "should we wait it out?" "should we call the doctor?" "should we make that dreaded 2 hour drive to Jackson?" etc?????????
Say some prayers for our Olivia Torian. She is having a feeding tube put in surgically next month. Tara: Take notes, we may be right there behind yall.
Life is challenging. Life with a sick child is overwhelmingly challenging at times. (Not even sure overwhelmingly is a word.) It is always "what if this?" "what if that?" "should I go home from work?" "should we wait it out?" "should we call the doctor?" "should we make that dreaded 2 hour drive to Jackson?" etc?????????
Say some prayers for our Olivia Torian. She is having a feeding tube put in surgically next month. Tara: Take notes, we may be right there behind yall.
Wednesday, March 17, 2010
Ten Days Without the Tube
Thanks Debbie and Kathleen for the info. I will start adding coffee creamer today!! I go to the heart doc next week. I will ask about the duocal. I have been told about the duocal, but last time I mentioned it to my heart doc, she frowned about it. I think it had to do with her intake of liquids. She has to have so many ounces of fluid per day for her shunt to work correctly. She is taking enough fluids now. Last time we took the feeding tube out she averaged 18 to 20 ounces a day. This time she is averaging 23-26 ounces a day.
How much coffee creamer Debbie? As much as she will tolerate? Or is there a formula?
We give all of the praise and glory for this answer to prayers to God our Father! We pray that He will continue to allow Mackynlee to increase her feedings and gain weight without the support of a feeding tube.
Ms. Peggy has been moved to a room and her feeding tube has been removed!! Praise God!!
Continue praying for Rhonda Pittman(breast cancer), Micah Goar(she will be having a baby tomorrow), Tammy McNabb(she will be having a baby before this month is over), Joy Stringer and new baby boy, Bill Morris(in FGH), Ms. Earlene Mitchel(in hospital), and all others that are in need that I am not aware of. God knows.
Last night at our BYW meeting, we focused on praying for the schools. Please lift up our local schools this week. Columbia Public Schools, East Marion, West Marion, and Columbia Academy. Pray for our administraters, our teachers, our janitors, our bus drivers, our cafeteria workers, our parents and students.
"Make a joyful noise unto the LORD, all ye lands. Serve the LORD with gladness: come before his presence with singing. Know ye that the LORD he is God: it is he that hath made us, and not we ourselves; we are his people, and the sheep of his pasture. Enter into his gates with thanksgiving, and into his courts with praise: be thankful unto him, and bless his name. For the LORD is good; his mercy is everlasting; and his truth endureth to all generations. "
Psalm 100:1-5
What does God want from us? According to this scripture He wants us to be joyful, recognize Him as our Creator, be thankful, serve Him, and praise Him. He wants our joy to be full. He wants us to be happy.
It tells us to keep our hearts and minds on Him. Throughout the day we can praise Him and thank Him with words and song. He is deserving of our praises. He loves us more than we can comprehend. He is waiting patiently for us to acknowledge Him. He is waiting patiently to pick us up when, through our own efforts, we fall flat on our faces.
Have you ever broken open a piggy bank expecting to find more money than what you had put in it? Of course not! God has given you life and His love. Now he is waiting for you to put in your share. Then, once you begin giving back to God He will pour out the blessings on you. Luke 6:38 tells us, "Give, and it shall be given unto you; good measure, pressed down, and shaken together, and running over, shall men give into your bosom. For with the same measure that ye mete withal it shall be measured to you again." In other words, you will receive more than you give. Your piggy bank will have more in it than what you put there!
God has wonderful things for us. He is holding out His hand. It is up to us to take it.
How much coffee creamer Debbie? As much as she will tolerate? Or is there a formula?
We give all of the praise and glory for this answer to prayers to God our Father! We pray that He will continue to allow Mackynlee to increase her feedings and gain weight without the support of a feeding tube.
Ms. Peggy has been moved to a room and her feeding tube has been removed!! Praise God!!
Continue praying for Rhonda Pittman(breast cancer), Micah Goar(she will be having a baby tomorrow), Tammy McNabb(she will be having a baby before this month is over), Joy Stringer and new baby boy, Bill Morris(in FGH), Ms. Earlene Mitchel(in hospital), and all others that are in need that I am not aware of. God knows.
Last night at our BYW meeting, we focused on praying for the schools. Please lift up our local schools this week. Columbia Public Schools, East Marion, West Marion, and Columbia Academy. Pray for our administraters, our teachers, our janitors, our bus drivers, our cafeteria workers, our parents and students.
"Make a joyful noise unto the LORD, all ye lands. Serve the LORD with gladness: come before his presence with singing. Know ye that the LORD he is God: it is he that hath made us, and not we ourselves; we are his people, and the sheep of his pasture. Enter into his gates with thanksgiving, and into his courts with praise: be thankful unto him, and bless his name. For the LORD is good; his mercy is everlasting; and his truth endureth to all generations. "
Psalm 100:1-5
What does God want from us? According to this scripture He wants us to be joyful, recognize Him as our Creator, be thankful, serve Him, and praise Him. He wants our joy to be full. He wants us to be happy.
It tells us to keep our hearts and minds on Him. Throughout the day we can praise Him and thank Him with words and song. He is deserving of our praises. He loves us more than we can comprehend. He is waiting patiently for us to acknowledge Him. He is waiting patiently to pick us up when, through our own efforts, we fall flat on our faces.
Have you ever broken open a piggy bank expecting to find more money than what you had put in it? Of course not! God has given you life and His love. Now he is waiting for you to put in your share. Then, once you begin giving back to God He will pour out the blessings on you. Luke 6:38 tells us, "Give, and it shall be given unto you; good measure, pressed down, and shaken together, and running over, shall men give into your bosom. For with the same measure that ye mete withal it shall be measured to you again." In other words, you will receive more than you give. Your piggy bank will have more in it than what you put there!
God has wonderful things for us. He is holding out His hand. It is up to us to take it.
Monday, March 15, 2010
Sorry I have not been faithful in keeping up to date on Ms. Peggy's condition. As of yesterday, she had been taken off of the vent and was talking a little. Family is hoping she will be moved out of the ICU by tomorrow. This is all info from Sunday. I have not heard an update from today. I pray all is still going well. This is definitely a miracle from God.
Report on Mackynlee:
Last Sunday, 8 days ago, Mackynlee pulled out her feeding tube. We have not put it back in yet. (Do not report this to any of her doctors!! LOL) She weighed 17lbs and 12 ounces before the tube came out. Her weight has fluctuated up and down this week. She weighed 17lbs and 11ounces yesterday. She is not gaining as quickly as she would if we were tube feeding her, but she is holding her own. That is a major improvement from the last time we took out her tube. The last time, she lost weight quickly and was very fussy. She is still acting like her normal self. I feel as if she is getting satisfied, but still not taking in enough on her own to gain weight. Heart mom that have gone through this::: Any tricks to try to get her to gain weight? I am changing her slowly from 27 cal formula to pediasure. The pediasure has 30 cals per serving. That could help just bit with her weight gain.
Everyone is invited to our house Saturday March 20th. From 3 til 5 we are going to eat and socialize. This special time is to support Rhonda Pittman in love and friendship as she goes through a difficult time in her life battling breast cancer. Hope everyone can attend
Report on Mackynlee:
Last Sunday, 8 days ago, Mackynlee pulled out her feeding tube. We have not put it back in yet. (Do not report this to any of her doctors!! LOL) She weighed 17lbs and 12 ounces before the tube came out. Her weight has fluctuated up and down this week. She weighed 17lbs and 11ounces yesterday. She is not gaining as quickly as she would if we were tube feeding her, but she is holding her own. That is a major improvement from the last time we took out her tube. The last time, she lost weight quickly and was very fussy. She is still acting like her normal self. I feel as if she is getting satisfied, but still not taking in enough on her own to gain weight. Heart mom that have gone through this::: Any tricks to try to get her to gain weight? I am changing her slowly from 27 cal formula to pediasure. The pediasure has 30 cals per serving. That could help just bit with her weight gain.
Everyone is invited to our house Saturday March 20th. From 3 til 5 we are going to eat and socialize. This special time is to support Rhonda Pittman in love and friendship as she goes through a difficult time in her life battling breast cancer. Hope everyone can attend
Monday, March 1, 2010
Monday...................
Hello everyone. The party was excellent. We raised a thousand dollars for CHD research. Loved everyone wearing red.(I put a pic on my carepage. www.carepage.com/babybedwell. I will try to download pics to my blog later. I have not done this before.) I have so many people to thank for helping make this celebration such a success.
Kathryn and Shayne Lowery
Stacy and Susan Reagan
Shelly Anthony
Cindy Stogner
Jennifer Lowery
Trevor and Krystal Graves
Ms. Diane Bedwell
Ms. Diane Gibson
Ms. Faye Hicks
Susan Johnson
Ms. Susan Slocum
Sarah Blakeney
Julie Howdeshell
Ryan Stringer
Dillon Reid
Marie Haney
Kylan Reid
Jay Reagan
Bro. Tim Parker
Tammy McNabb
Wendy Hammond
Donna Ratliff
Keli Ellzey
Foxworth First Baptist Church
(Hope I did not leave any one out. If I did, don't tell me. But, please forgive me. LOL)
We are so blessed to have so much support from our friends, family, and community. We love all of you.
Please rememeber Barry and Joy Stringer in your prayers this week. Also remember Tate and Lauren Robertson in your prayers. Both families are expecting a new baby on Wednesday. This poem is dedicated to them.
Little baby on the way,
Getting bigger every day,
Kicking mommy here and there,
God please listen to our prayer.
Keep our baby safe and strong,
Let his time with us be long,
Help us teach him right form wrong,
And we shall praise thee all day long.
This little one, though not yet here,
Is loved so much, has grown quite dear.
Delivery time is growing near,
That's why we pray our plea you'll hear.
Please help up Lord, we pray to Thee
With thankful heart, on bended knee,
To raise this child that he might be,
A happy child because of me.
Please remember a friend of a friend, Billy Morris. He is in ICU at Forrest General Hospital. Mark's cousin, Carolee Smith is in the CICU at Forrest General. She suffered a massive heart attack last week. She is scheduled to have surgery Friday. My Uncle LeRoy Patterson is in the hospital in Jackson. He has blood clots in his legs and in his lungs. Pray for the Harper family, Angela Harper's father passed away. Keep all of these in your prayers.
Continue to remember our friend Rhonda Pittman who has breast cancer. We are planning a party for her at our house on March 20. Mark your calendars. I will let you know more info about this soon.
As I was looking for a bible verse, story, etc. to end with, a friend of mine text me the following verse. I will now share it with you.
I CAME SO THEY CAN HAVE REAL AND ETERNAL LIFE MORE AND BETTER LIFE THAN THEY EVER DREAMED OF. John 10:10
Kathryn and Shayne Lowery
Stacy and Susan Reagan
Shelly Anthony
Cindy Stogner
Jennifer Lowery
Trevor and Krystal Graves
Ms. Diane Bedwell
Ms. Diane Gibson
Ms. Faye Hicks
Susan Johnson
Ms. Susan Slocum
Sarah Blakeney
Julie Howdeshell
Ryan Stringer
Dillon Reid
Marie Haney
Kylan Reid
Jay Reagan
Bro. Tim Parker
Tammy McNabb
Wendy Hammond
Donna Ratliff
Keli Ellzey
Foxworth First Baptist Church
(Hope I did not leave any one out. If I did, don't tell me. But, please forgive me. LOL)
We are so blessed to have so much support from our friends, family, and community. We love all of you.
Please rememeber Barry and Joy Stringer in your prayers this week. Also remember Tate and Lauren Robertson in your prayers. Both families are expecting a new baby on Wednesday. This poem is dedicated to them.
Little baby on the way,
Getting bigger every day,
Kicking mommy here and there,
God please listen to our prayer.
Keep our baby safe and strong,
Let his time with us be long,
Help us teach him right form wrong,
And we shall praise thee all day long.
This little one, though not yet here,
Is loved so much, has grown quite dear.
Delivery time is growing near,
That's why we pray our plea you'll hear.
Please help up Lord, we pray to Thee
With thankful heart, on bended knee,
To raise this child that he might be,
A happy child because of me.
Please remember a friend of a friend, Billy Morris. He is in ICU at Forrest General Hospital. Mark's cousin, Carolee Smith is in the CICU at Forrest General. She suffered a massive heart attack last week. She is scheduled to have surgery Friday. My Uncle LeRoy Patterson is in the hospital in Jackson. He has blood clots in his legs and in his lungs. Pray for the Harper family, Angela Harper's father passed away. Keep all of these in your prayers.
Continue to remember our friend Rhonda Pittman who has breast cancer. We are planning a party for her at our house on March 20. Mark your calendars. I will let you know more info about this soon.
As I was looking for a bible verse, story, etc. to end with, a friend of mine text me the following verse. I will now share it with you.
I CAME SO THEY CAN HAVE REAL AND ETERNAL LIFE MORE AND BETTER LIFE THAN THEY EVER DREAMED OF. John 10:10
Wednesday, February 24, 2010
Happy Birthday
The following comment from Teri says it best!!!
by Teri Hendrickson
I can't believe it's been a whole year already...and only one year?! Funny how fast and slow 365 days can go. Happy Birthday little Miss Mackynlee!
Our Precious Daughter
we celebrate your birthday, as you turn one today,
but we have got the gift, just the perfect gift,
that on this very special day, God gave away,
a gift of love from up above, so unique and so rare.
God has specially made you to the very tip of your nose,
as precious as a flower, as tender as a rose.
fulfilled and blessed our lives we have and all because of you,
as sweet as honey, so innocent and pure.
we watch and pray as you grow,
in love and in faith, in beauty and in grace,
you bring us joy and pure delight,
just to gaze upon your lovely face.
our hearts you keep warm and are with you wherever you may go,
and as you go on life's journey, only happiness may you find,
you are the joyful moments through our sorrow,
you are our hope and promise of our tomorrow.
'cause you are our pride, our unconditional love we pledge,
'cause you are our joy, our undivided bond we cherish,
'cause you are our sunshine, our embrace is your shield through the rain,
'cause you are our little girl, our hugs and kisses will take away your pain.
we asked God for a flower and He gave us a bouquet
we asked God for a minute and He gave us a day
we prayed to God for true love and He gave us that too
we prayed to God for an angel and He gave us you.
May God bless you dear angel
especially on this day
that marks your birth,
for all the special ways you bring
a bit of heaven into our world.
may God bless you, Today, Tomorrow and Always
in Peace in Health in Happiness and in Love.
with love
Mom and Dad
I have been working on a slideshow of this past year. My favorite section of the video is about friendship. We appreciate all of our precious friends (new and old) for supporting us this past year. Mark and I are so blessed to have so many true friends. We live in a wonderful community. We love all of you. Words cannot express it enough. The following song is on the slideshow. This is dedicated to everyone that has helped make this past year a little less stressful for us.
Find Out Who Your Friends Are
Run your car off the side of the road
Get stuck in a ditch way out in the middle of nowhere
Or get yourself in a bind lose the shirt off your back
Need a floor, need a couch, need a bus fare
This is where the rubber meets the road
This is where the cream is gonna rise
This is what you really didn't know
This is where the truth don't lie
{Chorus}
You find out who your friends are
Somebody's gonna drop everything
Run out and crank up their car
Hit the gas, get there fast
Never stop to think 'what's in it for me?' or 'it's way too far'
They just show on up with their big old heart
You find out who your friends are
Everybody wants to slap your back
wants to shake your hand
when you're up on top of that mountain
But let one of those rocks give way then you slide back down look up
and see who's around then
This ain't where the road comes to an end
This ain't where the bandwagon stops
This is just one of those times when
A lot of folks jump off
{Chorus}
When the water's high
When the weather's not so fair
When the well runs dry
Who's gonna be there?
{Chorus}
You find out who your friends are
(yeah, yeah)
You find out who your friends are
Run your car off the side of the road
Get stuck in a ditch way out in the middle of nowhere
(Well man, I've been there)
Or get yourself in a bind lose the shirt off your back
Need a floor, need a couch, need a bus fare
(Man, I've been there)
Man, I've been there
Oooh yeah.
REMINDER: Mark your calendars for 3-5 Saturday. It is going to be a great celebration. A special thank you to Kathryn and Shayne. They have both been working so hard on getting everything ready. They are the best!! We love yall!!
by Teri Hendrickson
I can't believe it's been a whole year already...and only one year?! Funny how fast and slow 365 days can go. Happy Birthday little Miss Mackynlee!
Our Precious Daughter
we celebrate your birthday, as you turn one today,
but we have got the gift, just the perfect gift,
that on this very special day, God gave away,
a gift of love from up above, so unique and so rare.
God has specially made you to the very tip of your nose,
as precious as a flower, as tender as a rose.
fulfilled and blessed our lives we have and all because of you,
as sweet as honey, so innocent and pure.
we watch and pray as you grow,
in love and in faith, in beauty and in grace,
you bring us joy and pure delight,
just to gaze upon your lovely face.
our hearts you keep warm and are with you wherever you may go,
and as you go on life's journey, only happiness may you find,
you are the joyful moments through our sorrow,
you are our hope and promise of our tomorrow.
'cause you are our pride, our unconditional love we pledge,
'cause you are our joy, our undivided bond we cherish,
'cause you are our sunshine, our embrace is your shield through the rain,
'cause you are our little girl, our hugs and kisses will take away your pain.
we asked God for a flower and He gave us a bouquet
we asked God for a minute and He gave us a day
we prayed to God for true love and He gave us that too
we prayed to God for an angel and He gave us you.
May God bless you dear angel
especially on this day
that marks your birth,
for all the special ways you bring
a bit of heaven into our world.
may God bless you, Today, Tomorrow and Always
in Peace in Health in Happiness and in Love.
with love
Mom and Dad
I have been working on a slideshow of this past year. My favorite section of the video is about friendship. We appreciate all of our precious friends (new and old) for supporting us this past year. Mark and I are so blessed to have so many true friends. We live in a wonderful community. We love all of you. Words cannot express it enough. The following song is on the slideshow. This is dedicated to everyone that has helped make this past year a little less stressful for us.
Find Out Who Your Friends Are
Run your car off the side of the road
Get stuck in a ditch way out in the middle of nowhere
Or get yourself in a bind lose the shirt off your back
Need a floor, need a couch, need a bus fare
This is where the rubber meets the road
This is where the cream is gonna rise
This is what you really didn't know
This is where the truth don't lie
{Chorus}
You find out who your friends are
Somebody's gonna drop everything
Run out and crank up their car
Hit the gas, get there fast
Never stop to think 'what's in it for me?' or 'it's way too far'
They just show on up with their big old heart
You find out who your friends are
Everybody wants to slap your back
wants to shake your hand
when you're up on top of that mountain
But let one of those rocks give way then you slide back down look up
and see who's around then
This ain't where the road comes to an end
This ain't where the bandwagon stops
This is just one of those times when
A lot of folks jump off
{Chorus}
When the water's high
When the weather's not so fair
When the well runs dry
Who's gonna be there?
{Chorus}
You find out who your friends are
(yeah, yeah)
You find out who your friends are
Run your car off the side of the road
Get stuck in a ditch way out in the middle of nowhere
(Well man, I've been there)
Or get yourself in a bind lose the shirt off your back
Need a floor, need a couch, need a bus fare
(Man, I've been there)
Man, I've been there
Oooh yeah.
REMINDER: Mark your calendars for 3-5 Saturday. It is going to be a great celebration. A special thank you to Kathryn and Shayne. They have both been working so hard on getting everything ready. They are the best!! We love yall!!
Tuesday, February 23, 2010
1st celebration of life/CHD Awareness
Mackynlee's 1st bday is tomorrow. Her celebration is Saturday from 3 to 5 at Shayne and Kathryn Lowery's. Everyone is invited to attend. No gifts please. There will be a basket for donations if anyone would like to donate money that will go toward CHD research. Everyone is asked to wear red to this party.
I am working on a video of Mackynlee's first year of life. I have posted messages to several of you heart mom's on fb about this. I want pics of children that we have met through blogspots along this journey. I am making a special section in the slideshow that is in honor and memory of special children and their families that have fought a medical battle along side of us this past year(does not have to be just heart problems). Your support means so much to us. I would love for you to send a pic of the child and a family pic. Please include his/her diagnosis and any other info about child. Also, I need the jpeg if possible. I need this asap since the party is Saturday. If you send me a pic to use, I will mail you a copy of the slideshow. My email is markbedwell@bellsouth.net.
I am working on a video of Mackynlee's first year of life. I have posted messages to several of you heart mom's on fb about this. I want pics of children that we have met through blogspots along this journey. I am making a special section in the slideshow that is in honor and memory of special children and their families that have fought a medical battle along side of us this past year(does not have to be just heart problems). Your support means so much to us. I would love for you to send a pic of the child and a family pic. Please include his/her diagnosis and any other info about child. Also, I need the jpeg if possible. I need this asap since the party is Saturday. If you send me a pic to use, I will mail you a copy of the slideshow. My email is markbedwell@bellsouth.net.
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