The following comment from Teri says it best!!!
by Teri Hendrickson
I can't believe it's been a whole year already...and only one year?! Funny how fast and slow 365 days can go. Happy Birthday little Miss Mackynlee!
Our Precious Daughter
we celebrate your birthday, as you turn one today,
but we have got the gift, just the perfect gift,
that on this very special day, God gave away,
a gift of love from up above, so unique and so rare.
God has specially made you to the very tip of your nose,
as precious as a flower, as tender as a rose.
fulfilled and blessed our lives we have and all because of you,
as sweet as honey, so innocent and pure.
we watch and pray as you grow,
in love and in faith, in beauty and in grace,
you bring us joy and pure delight,
just to gaze upon your lovely face.
our hearts you keep warm and are with you wherever you may go,
and as you go on life's journey, only happiness may you find,
you are the joyful moments through our sorrow,
you are our hope and promise of our tomorrow.
'cause you are our pride, our unconditional love we pledge,
'cause you are our joy, our undivided bond we cherish,
'cause you are our sunshine, our embrace is your shield through the rain,
'cause you are our little girl, our hugs and kisses will take away your pain.
we asked God for a flower and He gave us a bouquet
we asked God for a minute and He gave us a day
we prayed to God for true love and He gave us that too
we prayed to God for an angel and He gave us you.
May God bless you dear angel
especially on this day
that marks your birth,
for all the special ways you bring
a bit of heaven into our world.
may God bless you, Today, Tomorrow and Always
in Peace in Health in Happiness and in Love.
with love
Mom and Dad
I have been working on a slideshow of this past year. My favorite section of the video is about friendship. We appreciate all of our precious friends (new and old) for supporting us this past year. Mark and I are so blessed to have so many true friends. We live in a wonderful community. We love all of you. Words cannot express it enough. The following song is on the slideshow. This is dedicated to everyone that has helped make this past year a little less stressful for us.
Find Out Who Your Friends Are
Run your car off the side of the road
Get stuck in a ditch way out in the middle of nowhere
Or get yourself in a bind lose the shirt off your back
Need a floor, need a couch, need a bus fare
This is where the rubber meets the road
This is where the cream is gonna rise
This is what you really didn't know
This is where the truth don't lie
{Chorus}
You find out who your friends are
Somebody's gonna drop everything
Run out and crank up their car
Hit the gas, get there fast
Never stop to think 'what's in it for me?' or 'it's way too far'
They just show on up with their big old heart
You find out who your friends are
Everybody wants to slap your back
wants to shake your hand
when you're up on top of that mountain
But let one of those rocks give way then you slide back down look up
and see who's around then
This ain't where the road comes to an end
This ain't where the bandwagon stops
This is just one of those times when
A lot of folks jump off
{Chorus}
When the water's high
When the weather's not so fair
When the well runs dry
Who's gonna be there?
{Chorus}
You find out who your friends are
(yeah, yeah)
You find out who your friends are
Run your car off the side of the road
Get stuck in a ditch way out in the middle of nowhere
(Well man, I've been there)
Or get yourself in a bind lose the shirt off your back
Need a floor, need a couch, need a bus fare
(Man, I've been there)
Man, I've been there
Oooh yeah.
REMINDER: Mark your calendars for 3-5 Saturday. It is going to be a great celebration. A special thank you to Kathryn and Shayne. They have both been working so hard on getting everything ready. They are the best!! We love yall!!
Wednesday, February 24, 2010
Tuesday, February 23, 2010
1st celebration of life/CHD Awareness
Mackynlee's 1st bday is tomorrow. Her celebration is Saturday from 3 to 5 at Shayne and Kathryn Lowery's. Everyone is invited to attend. No gifts please. There will be a basket for donations if anyone would like to donate money that will go toward CHD research. Everyone is asked to wear red to this party.
I am working on a video of Mackynlee's first year of life. I have posted messages to several of you heart mom's on fb about this. I want pics of children that we have met through blogspots along this journey. I am making a special section in the slideshow that is in honor and memory of special children and their families that have fought a medical battle along side of us this past year(does not have to be just heart problems). Your support means so much to us. I would love for you to send a pic of the child and a family pic. Please include his/her diagnosis and any other info about child. Also, I need the jpeg if possible. I need this asap since the party is Saturday. If you send me a pic to use, I will mail you a copy of the slideshow. My email is markbedwell@bellsouth.net.
I am working on a video of Mackynlee's first year of life. I have posted messages to several of you heart mom's on fb about this. I want pics of children that we have met through blogspots along this journey. I am making a special section in the slideshow that is in honor and memory of special children and their families that have fought a medical battle along side of us this past year(does not have to be just heart problems). Your support means so much to us. I would love for you to send a pic of the child and a family pic. Please include his/her diagnosis and any other info about child. Also, I need the jpeg if possible. I need this asap since the party is Saturday. If you send me a pic to use, I will mail you a copy of the slideshow. My email is markbedwell@bellsouth.net.
Wednesday, February 3, 2010
New Hope
As all of you know, this is Mackynlee's birthday month. I have been thinking so much about this time last year, her birth, and the two surgeries she went through. She is a true miracle from the Heavens above.
We are planning her birthday party for the last Saturday of this month. Everyone is invited to join us for this celebration. I will be giving more details on this event soon.
"Mary set out in haste to a town of Judah, where she entered the house of Zechariah and greeted Elizabeth. When Elizabeth heard Mary's greeting, the infant leaped in her womb, and Elizabeth, filled with the Holy Spirit, cried out in a loud voice, 'Most blessed are you among women, and blessed is the fruit of your womb. And blessed are you who believed that what was spoken to you by the Lord would be fulfilled.'
And Mary said, 'My soul proclaims the greatness of the Lord; my spirit rejoices in God my Savior. For he has looked upon his handmaid's lowliness; behold, from now on all ages will call me blessed. The Mighty One has done great things for me, and holy is his name.'"
Luke 1: 39-49
God's greatest gift to a man and woman is the gift of a child. A mother is touched by the love of God in a unique way when a child comes to life within her. When her child stirs in the first movements of new life, she becomes part of God's greatest miracle. Her child is completely new, yet so close to her that she can hardly distinguish her child from herself. This child makes her life a circle of love. It is a circle made complete by God, and as long as God is present, this circle of love will be unbroken.
--------------------------------------------------------------------------------
"God our Father, you bestow your greatest blessing on us when you call upon us to take part in the miracle of bringing new life into the world. You fill us with wonder as we watch this life grow from its very beginning. And you teach us to love as we love this child whom you entrust to our care. We give you thanks for this gift of life, and as we cherish this gift we ask you to encircle us always with your fatherly love."
Wanted to touch base with everyone. Our miracle Mackynlee now weighs 17 lbs!!!!!!!!! Way to go!!!!!!!!! Yesterday we had an appointment with her neurologist. She gave us lots of new hope. She believes that Mackynlee's feeding issues do relate to her seizure activity. We are going to be changing seizure medications. This is going to take 40 days. It is a slow process. Doc believes within a couple to three months our baby will be eating with out a feeding tube!! Keep the prayers going up. This would definitely be an answer to our prayers. Yesterday's appointment was a confirmation from God that we did the right thing by not preceeding with the peg tube surgery. I know many heart babies have difficulties eating, and I can accept that her eating problems are heart related. It is just that her tongue does this weird thing. It has been doing weird things since before we left CHOP. Yesterday was the first time that I felt any doc was truely listening to me describing her strange tongue movements. In the past, I feel everyone has just written this feeding issue off to her heart defect. Which that still may be the case, but if changing her meds may get her eating on her own, hey that's easy enough to give it a try.
Physically, Mackynlee is crawling. Well, she crawls with one leg and walks with the other. It is too precious. She is babbling a lot. Last night Mark was picking on me and I said to Mackynlee to say "dada hush." She said "DAAA" quite loudly. She is just such a joy to us. She thinks she is just as big as Shelby and Connor. She likes to play chase, hide n seek, and the list goes on and on.
Prayer List:
My friend Rhonda Pittman had surgery yesterday. Keep her and her family in your prayers.
Our Uncle Charles is still in the hospital. He is still on a vent. He is not doing well at all. Lift him and his family up in your prayers continuously!!
I am sure there is many more, but I have to get to my sweet fifth graders. Break time is over for me.
We are planning her birthday party for the last Saturday of this month. Everyone is invited to join us for this celebration. I will be giving more details on this event soon.
"Mary set out in haste to a town of Judah, where she entered the house of Zechariah and greeted Elizabeth. When Elizabeth heard Mary's greeting, the infant leaped in her womb, and Elizabeth, filled with the Holy Spirit, cried out in a loud voice, 'Most blessed are you among women, and blessed is the fruit of your womb. And blessed are you who believed that what was spoken to you by the Lord would be fulfilled.'
And Mary said, 'My soul proclaims the greatness of the Lord; my spirit rejoices in God my Savior. For he has looked upon his handmaid's lowliness; behold, from now on all ages will call me blessed. The Mighty One has done great things for me, and holy is his name.'"
Luke 1: 39-49
God's greatest gift to a man and woman is the gift of a child. A mother is touched by the love of God in a unique way when a child comes to life within her. When her child stirs in the first movements of new life, she becomes part of God's greatest miracle. Her child is completely new, yet so close to her that she can hardly distinguish her child from herself. This child makes her life a circle of love. It is a circle made complete by God, and as long as God is present, this circle of love will be unbroken.
--------------------------------------------------------------------------------
"God our Father, you bestow your greatest blessing on us when you call upon us to take part in the miracle of bringing new life into the world. You fill us with wonder as we watch this life grow from its very beginning. And you teach us to love as we love this child whom you entrust to our care. We give you thanks for this gift of life, and as we cherish this gift we ask you to encircle us always with your fatherly love."
Wanted to touch base with everyone. Our miracle Mackynlee now weighs 17 lbs!!!!!!!!! Way to go!!!!!!!!! Yesterday we had an appointment with her neurologist. She gave us lots of new hope. She believes that Mackynlee's feeding issues do relate to her seizure activity. We are going to be changing seizure medications. This is going to take 40 days. It is a slow process. Doc believes within a couple to three months our baby will be eating with out a feeding tube!! Keep the prayers going up. This would definitely be an answer to our prayers. Yesterday's appointment was a confirmation from God that we did the right thing by not preceeding with the peg tube surgery. I know many heart babies have difficulties eating, and I can accept that her eating problems are heart related. It is just that her tongue does this weird thing. It has been doing weird things since before we left CHOP. Yesterday was the first time that I felt any doc was truely listening to me describing her strange tongue movements. In the past, I feel everyone has just written this feeding issue off to her heart defect. Which that still may be the case, but if changing her meds may get her eating on her own, hey that's easy enough to give it a try.
Physically, Mackynlee is crawling. Well, she crawls with one leg and walks with the other. It is too precious. She is babbling a lot. Last night Mark was picking on me and I said to Mackynlee to say "dada hush." She said "DAAA" quite loudly. She is just such a joy to us. She thinks she is just as big as Shelby and Connor. She likes to play chase, hide n seek, and the list goes on and on.
Prayer List:
My friend Rhonda Pittman had surgery yesterday. Keep her and her family in your prayers.
Our Uncle Charles is still in the hospital. He is still on a vent. He is not doing well at all. Lift him and his family up in your prayers continuously!!
I am sure there is many more, but I have to get to my sweet fifth graders. Break time is over for me.
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